Lazy Sunday

It thunder stormed really early this morning.  We tried sleeping thru it but that didn't happen because it was more scary than claming.  

Anyways, it was a good day overall other than the nurse forgetting to but the back flow valve on again.  Kenji slept most of the day and it was a quite day in the neighborhood. 

Another bad experience

Kenji had a new nurse today.  We made sure she was fine with his fluid changes and all before we left him in her care.  Kenji took a nap and woke up about an hour later.  I then noticed blood had backed up in his lines all the way to the filter.  I looked and again, the back flow valve was forgotten to be put in.  I rushed him upstairs.  (By this time the nurse left already) I called our home healthcare provider but I got tired to getting the on call service and waiting for a call.  So, we took his lines apart and rehooked it up ourselves.  I hope this doesn't harm Kenji in any way because it will not be pretty if anything happens to him because of this.

Other than that, we had a good day today.  

Found Nemo

Kenji is finding his love for his stuffed animals :)

Busy Bee

Today's another busy for Kenji. He met with his surgeon this morning. Per his surgeon, his stoma looks great and that we're doing a great job caring for it. *pack on the back* Then as soon as we pulled up in the driveway, his OT was there. She tried doing some exercises with him but he wouldn't tolerate it. Although he did do some tracking while I was holding him. After his OT session, I tried putting him to sleep but he wouldn't settle down so I went ahead and changed his ostomy bag since it was starting to lift. He didn't enjoy it at all...like always. He finally settled down after being swaddled and took a nap till his Speech Therapist arrived. He slept for a good hour or two on his tummy after that. So yeah, he been up for a good amount of the day. I hope he sleeps well tonight.

Eye exam

Kenji's eye exam this morning went well. He was sleeping peacefully till he was awoken for his eye drops. He woke up screaming then calmed down after I held him. His results were good. There's no presence of ROP still since laser surgery. We won't see the eye dr again till 3 months. Yay!

1st at home PT session

Since being out of the NICU, today's Kenji's first PT home session.  He hated it!  LOL He enjoyed OT much more.  The only exercise he didn't mind was being on his tummy and being held like superman.

I'm wide awake

For some reason, Kenji was up the majority of the day today.  Auntie Salma and cousins Shameena and Shahan visited boo boo today.  His bag needed to be changed in the aftenoon and we tried a new technique hoping it'll last longer.  He also had labs done today.