Feb Recap/Update

I can't remember what day exactly that we came home from my last update but we were not even home for a month and he ended back in the hospital due to a cough and a temp of 102 on 2/16.  The doctors were pretty sure it was another line infection bc that first day, he tested negative for RSV and his xrays didn't show any signs of pneumonia.  So, Kenji got admitted and the blood cultures started.  After 3 days of a negative cultures xrays were repeated and sure enough, pneumonia was present.  Then on day 5, he was tested for RSV again and was positive.  I hate thinking that he caught it in the hospital but whatever.  We ended up staying there for a total of 6 days.

All that sounds like no biggie but this hospital stay was one of our worst experience yet.  

Our first night, Kenji had a TPN overdose.

So, the nurse was priming Kenji's TPN to get rid of all the air bubbles in the line before hooking it up to Kenji.  After she hooked it up to Kenji, she left.  Daddy was holding Kenji bc he was fussing a lot.  After about 15-20 minutes, Daddy told me to check his blood sugar bc he's not acting normal.  His cry was different and it seemed to get weaker and weaker and so did his body.  I tested Kenji and his sugar level was 582!  I did it again just a few seconds later and all I got was "HI" (so his level went off the chart!)  We were a bit confused as to why and what was happening.  Daddy pointed out why the TPN volume was over 2000.  I then noticed the rate was set at 545ml!  His normal rate is 45ml/hr.  So he was getting more than 10x his regular rate.  I figured the nurse forgot to change his rate after priming the line.  I ran and grabbed a nurse.  By this time, Kenji was out and not responding to us.  The nurse placed his TPN on hold and went to call our nurse and the doctor.  He started to respond again after about 5 minutes.  The doc was going to give him a shot of insulin but she didn't bc we didnt want to create another a\problem with Kenji's sugar being too  low.  So, his TPN was turned off and we just let Kenji recover on his own.  It took him about 4-5 hours to normalize his level.  Then his TPN was hooked back up at it's correct rate.

So, with in 30 minutes, Kenji received about 5-6 hours worth of TPN.  That probably equals a bag of lollipops?  or a few pounds of sugar?  **shaking my head**  He recovered after a few hours but it took his body a few days.  After that incident, Kenji could barely move his hands and feet or grasp anything.

Can you say "Super Kenji"?  LOL

Other than that update, Kenji is doing great...especially with the new broviac.  He's so much happier...infection free.  We are still working with PT and OT on his developmental skills.  

I'd love to update more but it's so hard when we're in and out of our "2nd" home.