Line infection #4 + Rhinovirus

Looks like I jinxed us. Within 2 days of celebrating Kenji being infection free...he gets hit with a fever of 102 and we were off to the ER at 3am. Kenji was admitted Saturday and we're still here. We're at Levine's this time. His blood cultures were positive for Staph and he has Rhino (common cold virus). He's currently being treated with antibiotics. His culture from the 20th is still positive so doesn't look like we'll be home this week. In the meantime, the doctors here are also trying to figure out why he has low blood sugar. Killing two birds with one stone? Lol. So, what they did was, let his sugar drop and draw labs then hook him back up to his tpn. Latest update is that not all results are in but one of the problems is, his body doesn't make enough/any cortisol (the stress hormone). That result will be further tested. Is the brain not telling the body to make cortisol or is the body not making it? Hopefully we get it all figured out during our stay here.

Let's Celebrate?!

I know it's been a VERY long time since the last time I posted on here.  I'm so sorry!  But today, there's no Dr's appointments and no work...Kenji's with his nurse and I'm catching up on sleep and "Me" time :)  

Nothing but good things has happened since my last appearance on here.  Shall we do a happy dance?  

Kenji is 14 months old today (10.5 months adjusted?).  We've been trying very very hard to keep him out of the hospital and infection free.  Kenji did however ended up needing a blood transfusion and had to go to the ER due to a high temp of 101 and a bad cough.  We took Kenji to Levine's this time and to our surprise, they didn't admit us! They drew labs and cultures and did xrays and gave him a dose of antibiotics and sent us on our way!  They said his labs looked normal so to follow up with his Ped and they will contact us if his culture should come back positive.  Since our last admission to the hospital with numerous line infections, we decided we will wrap ALLLL access ports.  And I will say it's been pretty successful!  We are infection free for almost 2 months now!  

Developmentally, OMG, where do I start!  Let's just say he's a quick learner for a 24 weeker.  He's not crawling YET!  But he sure is inching and pivoting around like crazy.  He sleeps in his room during the day when we have nursing but he sleeps with us at nights.  We bought a bed rail when he started to roll. Then we ended up having to buy a second rail when he started to pivot and inch around bc every morning I would wake up to find him turned upside down on the bed, head at the end of the first bed rail.  

Something like this!  

He's able to get up in crawling position and rock back and forth and...scoot/hop!  LOL  And he's so use to his jumper that when we try to make him walk...he jumps/hops around only.  It's so cute!  He's also like to stand at the couch and play with his toys.  ---> We have play stations for him bc he gets bored so easily.  There's the jumper, play mat and couch.  If all that fails, our other options are, play on the Ipad, go watch TV downstairs and/or go have a walk outside.

Kenji is to start oral feeds too.  Not so much for nutrition but for pleasure and stimulation.  He had a Swallow Study done and he didn't do well with thin liquids like formula.  I will have to thicken formula with rice cereal to a pudding or apple sauce consistency for him.  We will have Speech Therapy to work with him now too.

We celebrated Mother's Day with a family dinner.  I couldn't be happier!  But I don't think anything will ever beat my 1st Mother's Day present though!

Remeber this?  Kenji went from vent to Cpap on Mother's Day 2012.

And look at him on Mother's Day 2013!  My bundle of joys!

Kenji also finally got to meet his cousin Madeline, Auntie Tia and Uncle Meng from CA! 

And to end this post...LOL

Lots of smiles, giggles and love!

Thank you to all your thoughts and prayers!